|The kids at the dinner.|
|Eli's birthday #1.|
Eli’s scans were good enough to get me through December - his birthday, diagnosis day, relapse diagnosis day, Christmas, and the New Year turn. He has no new growth (keep in mind it’s only been a month since his last scan), and all lesions are stable, except maybe one, and it’s hard to
|Shopping spree succss!|
happening, we are just prayerful that the treatment takes the upper hand soon. Until his body says otherwise, we are continuing on as is, and will scan again in February. Eli is currently the longest on the trial. Patient number one (ependymoma) showed progression back in the late summer, and pulled off the trial to do a modified version of it under compassionate
use. So, he is pioneering his own path alone now. Patient number three, Josh with glioblastoma, passed away last week, and I am sad every day for that family, and think about his mom Paula a lot. I think I have mentioned that our foundation will be working toward raising money for Dr. Johnson’s lab next year, so he recorded a short video about the immunotherapy program that he is growing at the Georgia Cancer Center at Augusta University. Watch and share the link: https://www.youtube.com/watch?v=KWY0ocNMxvw.
We drove to Birmingham Wednesday to deliver 6500 Santa letters to Macy’s Department store as part of its “Believe” campaign that benefits Make-a-Wish. Macy’s donates $1 per letter up to $1 million to MAW. Our non-profit had initiated a collection of the letters since we don’t have a Macy’s in our area, and we are
saddened to read some, like one that asked for Santa to put money in her lunch account, and one that asked for Santa to help her worry less. And were reminded how beautiful children are when “Eric V.” asked for a cure for childhood cancer.
We celebrated Eli’s actual birthday, December the 3rd, with the thing we know that he loves most - going to Toys R Us. He picked out his
|Eli and Dr. Gunn, Miss America 2005.|
The benefit dinner seemed to go very well. Our speaker was Dr. Deidre Downs Gunn, Miss America 2005. She was entertaining with her stories of the pageant, but also relevant to our cause as she chose childhood cancer as her charity platform during her “reign.” Dining entertainment was by a friend’s husband, Harpist Steven Miller, and he was absolutely fabulous. The meal by Suzanne’s Bakery was as expected, fantastic. We tried
|Winners from Eli's Block Party car shows at the dinner.|
We celebrated Eli’s birthday on his birthday, the 3rd, just our family, because Eli had requested that we see the new Star Wars movie for his birthday with his friends, so we had to wait to have his
|Science Museum with Caleb.|
I-Max theater and have a place to have cake. The Center allowed guests to visit the museum, and to have a free snack of their choice from movie concessions, too. Eli felt very special with the attention, and appreciated the friends that could come.
Number one and Number four wrapped up school for the mid-term, but Abbey and Eli are behind on their days in online schooling. I think
|Christmas Fonzie rolling in.|
|Birthday #2 at the Space Center.|
|Party kids at the Space Center.|
|Cousins ready for Star Wars.|
|Happy Birthday precious boy!|