thought to myself, “This is a kid with cancer.” On his brain no less, and multiple lesions, too. He is a walking testament to God’s existence.
It has been an incredibly busy couple of weeks. We are in Augusta tonight, having had the first of two MRI sessions done this morning in anticipation of checking the one tumor that showed progression last month. Results will be Monday.
We had a great Superhero Day for childhood cancer awareness earlier this month. The community event is a fundraiser, and an awareness effort by our foundation. We had over 2,000 people visit, and have received a lot of positive feedback for the event. It is a time drain to organize, with a lot of spokes in the wheel. But, the right players are falling into place that
|Captain America and Harvey Two-Face|
|Eli went as War Machine for Superhero Day, and wore it to clinic.|
The next weekend, I was supposed to be at a youth retreat with Abbey, and we did go to it, but had to come home that same night. I thought Abbey was having a seizure, but she fainted from dehydration,
|Some of our fav nurses and doc at the ST. Jude clinic.|
We left for the beach on Sunday, and came back on Thursday, so that Eli and I (and Abbey) could leave for Augusta on Friday to be ready for the MRI first thing this morning. We could not have had
seemed to satisfy their hope. We only had three days, and did the beach every day, with one afternoon going to a movie. We worked on school work while we were there, too. So, that was it, and it was wonderful. It was just what the doctor prescribed for all of us. On the way home, we stopped for Caleb to see the Capitol building in Montgomery, because he had studied about it in school, but it was closed when we got there. I’m so glad that we got the trip in before this MRI because things might
get crazy the next couple of weeks depending on what it shows.
Please, remember Josh, who I have mentioned before. He is the number three on the trial behind Eli, and Coulter (although technically, because of Eli’s delays early on with the chemo, they are on the exact same cycle, I think). He started having some worrisome symptoms this week, so they are also here getting an MRI. Coulter, the number one on the trial, had progression, so he was removed
from the trial and is on a compassionate use of the drug with a different chemo combo. If Eli shows progression of just the one tumor, he will have surgery to remove it, and continue on. If
|Caleb had been studying about our Capitol, so we drove by it.|
We’ve got a car show in Florence at McFarland Park October 15, but I don’t know if Eli will be ale to make it yet, and we will do Coffee for Cancer at Suzanne’s Bakery again on October 21. September will be over, but kids are still fighting, so, so are we. Here is a little video of Eli playing frisbee in the yard at home. It's not very exciting unless you understand the significance that he is able to do anything.