|Eli in his new size 12 pants!|
a feeling of worry, nervousness, or unease, about an imminent imaging appointment with an uncertain outcome.
It’s a made up word, but one that is used regularly among cancer parents as the time approaches for MRI checks. How a kid with medulloblastoma - maybe all cancers, not sure - looks or seems to feel is no indication of anything as far as what the scan might show. There are kids that have great color, eat great, no symptoms, and then scans show the cancer has returned, or has progressed. And there are kids that have had headaches, even seizures, nauseated, but their scans be clear. It’s hard to keep from trying to cheat for answers based on Eli’s current outward presentation, and think that his scan Monday and Tuesday are going to be “fantastic” again, as they were at the last scan two months ago. He and Vic left this afternoon for Augusta, Georgia, for the scans and check-up. I didn’t go this time because the other kids have things during the day Monday and Tuesday, and in order to juggle it Vic was going to have to take off work if I went to Georgia. Though he is a champion daddy, to multi-task with the kids going here and there for this and that, is a challenge. Since he had to take off work either way, he went with Eli, easy simple, and I am staying at home with the others…. pacing the floor, and packing on pounds under the stress of major scanxiety.
|The little tree on a roof.|
Speaking of roofs, someone asked about Eli’s tree on the roof that he talked about in a little church talk that he did for Lads to Leaders, and at a couple of other places. It’s still there, and it’s grown! How wonderful is that.
Vic and Eli have been hard at work on beefing up Bruce, so they are both excited to be adding a supercharger, and some peripheral parts to bring the horsepower up to something under 700, I think. And, they are considering just some fun, subtle changes, like painting some parts under the hood while the engine will be out.
It has been smothering hot here, and even though steam rises off of me everywhere I go, still it can not compare to Houston. We have Houston to thank for so much! If I dare complain about traffic - “Well, it’s not Houston”. If I dare complain about heat - “Well, it’s not Houston.” If I dare complain about distance to Augusta - “Well, it’s not Houston.” Ha!! Experience = Perspective. I did like Houston, actually, I think because our apartment was so awesome, in a super location, we enjoyed the tiny congregation that worshipped with, and the very tiny parts that we dealt with - Pearland, and the Medical District - were great. Still, it makes me appreciate my own home!!
|Eli's add-ons for Bruce.|
Please, take a moment today, to thank God for His hand on Eli and for being in control of His plan for him. We give Him the glory for Eli’s progress driven by the knowledge, skill, diligence, and care of medical personnel that He guides and leads. Eli has gone from 18 tumors when we started in March, to only nine (weird to say “only” nine, but success is relevant to where you begin), and he has no
|Eli burns me up wearing long sweatpants,|
long-sleeve shirts, and a winter hat in the
house, especially here where the very hot
summer sun streams in.
Emma passed away yesterday morning. I originally had the news in my post about Eli, but quickly removed it because I didn't realize the family had not announced it yet. I am around this so much now, that any words seem so redundant. How awful is it that to speak of a child dying is redundant. The Orlando shooting of 49 people (I think the number may have grown) was horrific by any measure, but please realize that 46 children are struck by a killer, newly diagnosed, every day. Named by the National Cancer Institute as the number one killer of children by disease, is cancer. Emma was one of six or seven that died yesterday at it's hand. She was a soldier, a pioneer, a light for Jesus, and a sweet, innocent child.