Monday, March 14, 2016
I’m so happy to get my hands on this little Rock Star! It’s always bittersweet leaving the others, or leaving Eli, it depends on if the road leads in or out. Torn in half, smile or cry - I do both for mos of a trip. But, I will see them next week when they come
I’m looking for unique things to do that are no more than an hour away while just he and I are here. I thought me might try to catch a baseball or softball game at Augusta University. He protested a bit, not a sports guy, but I may still try. I wrote the Augusta Country Club about The Masters, just to see if we might could make an autograph session, but I don’t think he would be very tolerant of standing at a hole if we got the chance to have tickets. He would never understand the significance of it. I also wrote a large electric vehicle manufacturing company (golf carts, etc.) here to see if they might do tours. There is a Kellogg’s manufacturing
We are still looking for sponsors for the car show materials, but I need to know yesterday because I’m about to start doing the artwork for signs, posters and shirts. Message me for a “menu” of prices. It is only two months away. Help us share in car clubs, and automotive groups.
Please, add Jake in the UK to your prayer list. I’ve followed Jake for a long time and he is not doing well. I think the palliative treatment he was on finally gave way and he has taken a bad turn. He is a teen that has been fighting relapse for a long time. Also, for Preston who had his first seizure due to the inflammation from extremely aggressive relapse. They are in the Northwest, I think in Washington state, and are trying to get to MD Anderson quickly. And, to correct something I told some of you in person about a little boy here that is on the same trial as Eli. A boy was sent to ICU in Atlanta, in an emergency situation from inflammation, last week, and I thought it was the other boy on the radiation arm of the trial like Eli, but it was not. It was a boy who is just getting the trial drug plus chemo, no radiation. Still alarming, but I just wanted to correct that. The mother of the first boy, his name is Coulter, said they are having good results from the treatment. I didn’t talk to her, so I don’t know what “good results” means (is it that tumors are shrinking, or the treatment is not causing any symptoms, etc. Vic talked to her, so I don’t have details.... but we do have pictures of zoo animals). Again, he is not medulloblastoma, but is another kind of brain cancer. Also, prayers for Quinn in Birmingham fighting a rare form of fourth ventricle cancers (medulloblastoma is a fourth ventricle cancer, or in the PNET family), and recently having to change treatments. Other names popping into my head are Chandler toughing it out in Memphis; Emma, from our hometown, who has been in Memphis for many months now, and battled through some dire hours; and Leah from home that had scans today. We rejoice with our friends the Crowes, who do so much for us and for St. Jude, in the news that Dylan is basically cured, seven years out from treatment for leukemia.
Eli shirts that were ordered shipped on Friday, so expect those. Maybe we can have an "Eli Blue Shirt Day" in April when we head home.