Monday, September 21, 2015

Eli is still doing very well as far as side affects go from the intrathecal methotrexate that he received Friday. Of course, I worry when he does have side affects, and when he doesn’t: “Why is he not sick, was the dose to low? He would have side affects if it was working.” The good and the bad torture you. He will have a lab check tomorrow to see how his blood and immune systems are faring. We are slow here at home, in the eye of the storm, just waiting, hoping that Sloan-Kettering calls soon as it has become pretty clear that no one is interested in continuing the treatment from the trial. The results weren’t exactly exciting, but still, I think it did something, but not enough, I guess, to entice another doctor to do it.

In the meantime, the wish people are on it. We are scheduled to fly to California Saturday. We will
tour Jay Leno’s garage on Monday, and will try to pick a couple of other things to do, then fly home Wednesday. Through Eli’s cancer journey, we have toured the country, done things beyond what we could have thought to do on our own. We have met interesting, amazing, and such kind and good-hearted people. Complete healing on earth is not the only way that God’s power is manifested, and without words, or without being able to voice it himself, Eli is a messenger. We have been living an almost four-year long revival. I pray that you have been watching with eyes that see, and ears that hear, and a heart that understands the bigger picture (Matthew 13).

I’ve still got Houston in my floor, so I’ve got work to do before Saturday. I’ve seen more relapse reports on a little fb group site that I’m a member of. It is so disturbing. Remember the families of
Zach, Drew, Baylee, and Rae, please lift the names of these children to their Creator.

Mark December 10 on your calendar. Our non-profit will be having a holiday benefit dinner featuring Huntsville Master Chorale, and keynote speaker Dr. Carolyn Russo, medical director of the affiliate program for St. Jude. There will be an amazing buffet dinner by Suzanne’s Bakery and Eatery. If you would like to sponsor this event, please contact us, it is going to be a great night to wrap up our amazing first year as a non-profit. Thank you for supporting us and our efforts.

I wanted to share some more of Eli’s Mustang photo shoot. Big thanks to David Higginbotham for
doing it, and to Dale McElyea for bringing out his vintage ’66 fastback, and to Eric Clark for bringing
 his ’14 GT with nitroboost. That was fun, Eli thought it was just like in his video games that he likes to play.

No comments:

Post a Comment

Note: Only a member of this blog may post a comment.