|Eli and precious Hannah at R. McDonald House.|
I had a little short-lived cold, I guess it was, not sure, but did not feel well Thursday night. We had reserved Friday to go to the natural science museum, but I stayed at the hotel to make sure I could rest and keep a check on whatever I was fighting. Thankfully, it got better instead of worse. I went pretty quickly, I felt much better by the afternoon. I do not get a lot of sleep, and had not the last couple of days, so I guess I was just kind of worn down, and then this little cold virus took more of a toll than usually would. Don’t know what that was about, but Caleb and Eli both had some kind of little cold when we first got here, so I guess that is what it was, or we went in an apartment that was not clean and I could smell cat. I am highly allergic. But, I never had a fever, just nose/head issues for a few hours, then it just kind of stopped. After the museum, I got cleaned up and we visited a special friend at the Ronald McDonald House. Hannah Meeson, eight years old, is a relapse medullo fighter and it was her parents, Nigel and Gaylene, that reached out to us with the “band-aid” treatment Eli was on after his first relapse - what he did at the St. Jude affiliate from home. Hannah had been on the same treatment, and clear from it, even. And, then, really, it was their knowledge of the NOAH trial
|Sharing for fun b/c I don't have any other pics.|
Caleb is now wearing the shirt that Eli has on
here. Eli is four in the picture wearing it,
Caleb is wearing it at age 7.
We found an apartment in Pearland, but we have not signed the papers, committed ourselves yet because we are still nervous about Eli’s chemistries. He will have blood work drawn Monday, so if all of that is ok, we will go for it. A friend here that is from home is gathering some minimal household items for us to borrow (towels, sheets, cookware and utensils), and we will rent minimal furniture.
|This is the day before his original surgery at LaBonheur.|
Friends came over to see him. He's in a hospital gown, and
this is before a port or line, so he has an IV in his arm.
|This was our first day at St. Jude, and our first encounter with|
a child life services person. You can tell by the look on his
that we have rarely taken full advantage of that service.
Tropical Storm Bill was pretty wimpy in Houston as far as I could tell. So, no more making fun of our snow days without snow! It just seemed like normal rain, strong some times, but on and off. But,
I am pretty distracted and busy with non-profit work, doing two things at once. We are laying the foundation for the organization itself, while also making time-sensitive preparations for Superhero Day, which is coming up for Childhood Cancer month in September. So, it’s a juggle just for that, but I feel like we’ve got a good head of steam and that we will find our niche and do our part.
We are in a lull right now with Eli, enjoying peace, laying our swords down while we rest a bit before the fight picks up again.Yet, I know that you are persistent in your prayers for Eli. In Paul’s letter to the Christians in Rome (delivered by a Christian woman named Phoebe, whom we heard a great lesson on last Sunday at Pearland) he outlines the lifestyle of a Christian, and one of my favorite, keenly simple statements that he writes through the mediation of the Holy Spirit is in chapter 12, verse 12: “Be joyful in hope, patient in affliction, faithful in prayer.” Thank you for helping us with those things.