Friday, February 13, 2015

Kicking back at clinic, watching for Berry’s Eagles’ babies to hatch on live cam and eating a Valentine’s Day donut. Eli was at clinic for his weekly check today, and since he had RSV and his blood pressure was showing high again, they wanted to do a full blood work up. His blood pressure has been high for him the last several times, and now his creatine level is a little high and he had some protein in his urine. So, they kept us for some fluids today. Those things together may indicate that his body is struggling with the drug Avastin. So, if Avastin is on the chopping block, and we’ve already had to miss Irinotecan completely at the last cycle, we may indeed be looking at the end of our chemo safety-net. We will know next week, because thankfully, we are scheduled for Memphis already and will have scans to work with when making that decision, and we will have a chance to talk with his lead oncologist, maybe even a nephrologist at La Bonheur - which we also love and for which I should do something. La Bonheur does all the heavy-lifting for St. Jude so that St. Jude can focus on the long-haul. It is a great relationship. La Bonheur seems content with the lesser limelight, but is a top-rated children’s hospital by its own right. Anyway, so, I would characterize my stress level as high or cosmic infinity, whichever. So, the stress for the first 3-month scan was already bearing down heavily, but add to this the possibility that we may have to stop something that was working is almost crushing. I’ve got a week to go, so I’m trying not to think about it too much. No reason to, nothing that I can prepare for or affect the outcome of, so I try to push it to the back of my mind until it’s in front of me. We’ve been doing 3 years of these scans, and still I feel like a vulnerable sitting duck. We’ve got an easy weekend of chores, ahead of us. We hope to be getting closer to opening registration for the car show. A local artist is doing the t-shirt for it, and I am so excited about it. You guys are going to love it, whether you come to the car show or not, you are going to want to order one. We are going to host a zumba ladies night out soon, hoping to generate a little spending money for the org to get us going. So, watch for that, we are hoping to make it a fun night. If you have an idea for a fundraiser that you’d like to do for us, if your business would like to host something for us in conjunction with some kind of promotional campaign, we are interested! So, most of you know that my car gave me another scare this week. But, we have him back temporarily, until a part comes in. Thankfully, it seemed to be a simple little tube that had just worn out after 14 years, so we are back to chasing 300! Thank you so much for your prayers for Eli and us. Please, say a prayer for Zach, a 19 year-old who has relapsed a third time, and for another local, a young adult, Javan, who was just diagnosed this week. If your group or class has collected pop-tops/tabs for the Ronald McDonald House, please have the representative contact me about meeting up.

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