The doctor said “we had to hunt for it,” referring to the cancer. They were impressed enough with the progress that they were comfortable to move Eli from eight-week scans to 12-week scans. So, it’s not
gone, but the couple of places left are small. The doctor seemed very pleased with the results, and I would almost say that he even seemed almost hopeful. Eli completed cycle 8 and I think I understood that the positive response has lasted longer than the doctor would have expected. There is data to show both short and long-term response, but he seemed to expect it to give out by now. I cautiously optimistic about that. So, even though it is still a band-aid, the treatment is doing what we had hoped, which is to buy time. How precious time is!
While we were there, Eli also saw the dentist and the endocrine doctor. He has four cavities that we will have to go back to Memphis to have filled, and they will pull a tooth or two while we are there. Dental work is something they do not take lightly
affect the teeth enamel, and I imagine all that puking that he did during his first treatment didn’t help the enamel either. And, it can’t help that he is not a great brusher. So, we will be going back to Memphis sometime soon for that.
The endocrine visit went pretty good. You might remember that just before relapse Eli had started growth hormone shots. He is growing just a tiny bit on his own, and his thyroid is normal. Evidently, this is strange to have a normal thyroid and less than normal pituitary (you might remember that his original second largest tumor was at the pituitary gland, so that area got fried with radiation). Usually, the thyroid gives out, then the pituitary, but Eli is doing his own thing as usual. They just want to continue to monitor all of that.
So, we are staying the course. Dr. Robinson said that since the disease was responding, we would keep pounding on it until his body tells us it has had enough. So, either until the cancer goes away, or until his body can’t recover from the treatment, (for example, his platelets are consistently low and he needs infusions), or until the cancer comes back. His hair and eyelashes are thinning now. He is also starting to look a bit gaunt. I pray to have the chance to see his thick dark hair and long lashes again. I am cautiously allowing my mind to think that I might. Nine months ago, I never would have thought we would be where we are right now.
We took everyone to Memphis. I gambled and lost on the hotel suite. They did have “room at the inn,” so we had to get a hotel for the rest of us. Except for spending the money, it worked out. Vic and
|Getting an oral x-ray.|
I can’t seem to get much traction with the homeschooling. It feels overwhelming and foreign. Hg seems to be doing decently, and she really enjoys going to the on-campus classes, but I can’t seem to
I am distracted a lot by our preparation for September, which is Childhood Cancer Awareness month. We are having a great response to our Superhero Fun Day, which is September 13 at Big Spring Memorial Park in Athens. If you would like an event t-shirt, which has the gold ribbon on it and superhero logo, you can order from the website at www.ourlittlesuperheroes.com. Please, encourage businesses to dress as Superheroes on September 12 to help raise awareness. Also, this week, the marker was laid at the tree that was planted in the park in honor of the cancer kids. I am so
|Vic as Spidey.|
We were proud to be back at the clinic to begin cycle 9 today. His ANC was pretty good considering this is number 9, but his hemoglobin was low, which was weird. He still got the whole dose, but I hated to start the cycle low on anything because it will only go low from here at the end of the week. So, pray that he doesn’t need any transfusions during this recovery period.
Brayden is fighting, please remember him, and remember a little boy named Grant who is fighting. I was thankful to see that little Aaron received good news that his scans were clear. I wish I could
|We found Batman at a local salon that is sponsoring the event.|