|Eli at the water pump at Ivy Green, Helen Keller's home.|
|In front of the main house at Ivy Green.|
|Eli taking a break outside the cottage.|
|The kids were invited behind the tourist rails to have their|
picture made where Helen ate her meals and threw awful
tantrums as a small child before Miss Sullivan came.
|Helen Keller was very religious. This is a braille Bible, not sure|
if it was hers. In the background is the doll used by Miss
Sullivan when she taught her to say "doll."
|After Ivy Green, we had fun at Spring Park.|
|We loved the train, especially this guy.|
We visited Ivy Green last week, and went to Spring park in Tuscumbia. I have been to Helen Keller’s home a few times over the years, and the girls have been once. But, how surreal to stand at
the water pump where Anne Sullivan finally broke through the darkness that held Helen Keller. And, how cool it was to count it as school!
Eli is doing pretty well. We had mid-cycle chemo today and they had to down-dose due to his immune system not being quite high enough to meet the treatment requirement. It was so close. I hate it, but I’d rather get less chemo for longer since it is working - or we still think it is working. We leave for Memphis next Sunday, August 17, for MRI on that Monday. I was afraid about him being able to rebound this cycle, but he seems decent. There aren’t many “normal” marks on his lab work sheet, but nothing horrible by St. Jude’s standards. Lack of eating continues to haunt us, but we just push and push. A dietician came to talk to us at the clinic. I told her everything we were doing and she just kind of said, well,
|We enjoyed reading about the Indians and the spring.|
We took a (cautious) trip to a water park this week. It was one of about three things left on the kids’ summer vacation bucket lists, so I really wanted to get it in, but I was nervous about Eli possibly needing blood or platelets since it was recovery week. Since his lab work was decent on Friday, we went on Monday and I watched him closely - CLOSELY, irritatingly close. His energy was low, which is always concerning and could be a sign that he needs blood, but he hadn’t had a nose bleed in day at that time, he didn’t have any more congestion so no sign of a cold coming on and his color was good. So, with no signs of anything impending, we went. He had been asking all summer to go, so we went without friends just in case we had to turn around and leave because of him (it’s one thing to disappoint my kids, but I’d hate to ask friends to go then say, “oh, sorry, Eli doesn’t look good, we’ve got to go home.” I would do that if I needed to, but I would hate to. I'm already not a very popular mother, so that would not help me in the polls for sure). The kids and I had a
|At Spring Valley Beach Park.|
So, we squeaked in those little day-outs because school started this week for Four and Two. Four started kindergarten and Two started sixth grade. One and Three continue their academic pursuits at Thunderhead Academy. It’s a little stormy at Thunderhead right now, but I’m hoping that with the others in school that the atmosphere will become a bit milder. I am hopeful for a slow weekend of mowing the yard and laundry and nothing. Please, please, remember sweet Brayden
|We had fun, it was a beautiful day.|