|Waiting for the show to begin.|
Eli seems to be recovered from the ear rupture and infections. He is eating fair, but does seem tired, still. This is week 21 of treatment, and it may be my imagination, but it seems to be finally taking a bit of a toll. He has little bursts of energy for this or that, or for when his Daddy gets home, but over all he seems tired and pale. His appetite, as I have already mentioned multiple times, seems less, and, his hair is changing. He has lost some, though still not noticeable, but the texture and color has changed. But, again, he’s been taking chemo for 21 weeks. Mild or not, it is still chemicals in his little body that are designed to kill cells, so what really would I expect. He also seems to be retracting socially some, which is somewhat common with pediatric cancer patients, especially brain patients who have received the extent of radiation he has in that area. Add to that, that his personality is already
|Big Sam and Eli's Escape.|
I found out about Brayden’s MRI results as I was packing for us to enjoy a weekend in Eli’s Escape - what he has named the pop-up camper that he got for his Make-a-Wish (does anyone local know
|My opinion only - I loved the boat more than the camping.|
Maybe it's just the captain in me talking, or I'm still a
little whoozy from the waves, but I would love a boat.
Eli, not so much, he is still a camper boy.
|The girls tubing.|
We tried to go fishing a few times, but again this weekend, just had no luck. Hg caught a good size bluegill, but not even a nibble beyond that. We had to give up on our idea of a fish-fry. I’m so glad that I brought hamburger back-ups. Camping is so much work, though. Just the packing and unpacking, and packing, and then unpacking again. Not to mention the setting up of the pop-up itself. I told Eli that we needed to ask Mr. Bankston what he would trade us even for used that was a pull-behind with a bathroom and more
beds. Eli said, “Well, it’s mine, and I will make that decision.” Ok, I will let him sleep on the table-top next time. And, we don’t cook when we camp. Mostly because I am inept at cooking, but also because I am there to play, too, and don’t want to cook and clean-up for hours. So, we did hamburgers, and roasted corn over the fire Saturday night, but that was it. The rest was cereal bars or muffins, and sandwiches and fruit. Done, let’s hit the water!
Except for driving the boat, it was not necessarily a relaxing weekend because of how much work it is to go, and I don’t sleep, literally I get no sleep, so it is tiring. Add to that physical stress the news that Brayden’s cancer had progressed and spread, and it was a weighty weekend. It is devastating news for his family, and so saddening for us for them, but it has implications for our family as well. We have been following
|Got him up first punch. He jumped the wake a few times, too.|
|We could cast right from our campsite, but we|
didn't even lose any bait to nibbling.
So, first - in addition to praying for Eli to tolerate his current treatment well, with minimal detriment to his little body, and that it continue to be successful - please, pray that the house sell for what we need it to sell for so that we may be out from under that tie. If we move out from under the wings of St. Jude, frankly, money is going to be an issue. We will be paying for whatever treatment we pursue, which will be astronomical. And, we still have all the usual, every day financial concerns of kids peripherals, plus Vic and I are not young, our own future medical issues are not that far off, and I have no hope of getting any kind of a job to help. So, that is something that is an added stress we know is coming.
Second, please pray for our other kids, that we make the right decisions for them at this crucial time in their youth and growth. We have made a heartbreaking decision to pull Eli from school and
|Hg got our one and only fish in two weekends of trying.|
|They liked the boat, too.|
|Some storms went around us, thank goodness.|
I sat at the very edge of this 69,000-acre lake with the water lapping gently at my feet early Saturday morning, almost like it was trying to tell me something. "God is here, look around," it whispered to comfort me as I anxiously brooded. What confidence we can have just by seeing the signs that God has created for us that he exists. In the letters to the Romans, Paul talks about the evidence of God’s existence in chapter 1 verse 20 just by looking around at the world in which we live. The evidence is His creation of this world, the circle of life, the environment, the seasons, the cosmos. But, without being brought to the valley, without the view from this perspective, would I have noticed those signs that show God’s handiwork and give me confidence that he is in control. I’m not sure that I would know the power of those signs so intensely if I was not looking out from under the Shadow.
We enjoyed the seeing the swarm of bats awaken and take flight in the night during our camping weekend. We would not have known that such a show was about to open had we not been shown the signs.
Please, remember to send your letters to St. Jude this month as part of Eli’s “Give Back when I Go Back.” Mail an encouraging card or letter to “A Special St. Jude Patient, 262 Danny Thomas Place, Memphis, TN 38105.” Please, include somewhere on it that you are a friend of Eli the Eliminator, and if you do not want to use your return address, you may use 107 S. Marion Street, Athens, AL 35611. You may also mail to “101 N. McLean Blvd, Memphis, TN 38104.” If you speak/write spanish, please, send a letter and write on
Our journey from here may be about to get interesting. Looking into treatments, dealing with the house, and my bumbling toe-dipping into the world of homeschooling. Thank you for sticking with us and sharing Eli so that he may be lifted in prayer to our Creator.