|He hasn't grown. They stopped the hormone|
when he relapsed.
So, the scheduler was gracious to work the schedule over and move our appointments back. I’ve driven the trailer before and the camper a couple of times, so by no means an expert, but I know about the counterintuitive moves to backing up a trailer. We arrived at St. Jude at 1500 hours, parking is a bear because of all the employees during regular business hours. I want to be nice and arrange the trailer so that whoever is unloading can easily get to it, and take in the building. But I also do not want to unhook the trailer if I can keep from it because it is two-wheeled, so it’s like a see-saw unhooked. If you put
your foot to go in, it will tip and probably roll if not propped at the wheels. And, you can’t just reach in to get it all. So, I eyed a tight spot on the side of the building that backs right up to a door. We were going to be late to our appointments that had already been moved, so I started trying to maneuver it in. This was near the guard house which was switching shifts. So, the one getting off decides to help me. thanks. So, he comes to my window, which I roll down. To back a trailer you turn the wheel opposite of the way you want it to go, and once it is going straight, in order to keep is straight, you constantly turn the steering wheel quickly back and forth. So, I start turing the steering wheel opposite of the way I need it to go, and he starts yelling at me, “No, no! Don’t go that way, just keep it going, keep it going the other way.” Well, there is one car that I can not see (no mirrors on the trailer), so I think well, he sees something I can’t, so I do as he says. Then he gets
|We watched the traffic and the pyramid at sunset...|
|... and we watched the traffic and pyramid at sunrise.|
The Grizzlies House gal was just in shock at the amount and said they wouldn’t have space to store that much. She asked that we share with the Ronald McDonald House. So, I made plans with some helpers from Sycamore View church of Christ to help unload at RMH. But, when I returned to the trailer, it was almost cleaned out, so I guess she changed her mind. Eli and I easily delivered it, then enjoyed an easy evening of a movie and pizza in the room. The morning started early today with our first appointment at 645 hours. He was first up for the imagine machine, and they run everybody through a sensitive metal detector before going back to MRI. Eli's shunt always sets it
The rest of the day went pretty smoothly with the wonderful news that the disease is responding to the treatment. I know we have some new friends following Eli, so I want to again remind everyone that we already knew that this will not be a lasting effect. What we don’t know is for how long. The highest hope is two years, but for now we are elated to have tomorrow. He tolerates the treatment extremely well for now. He has some nausea and minimal diarrhea only while he is on the chemo. His counts drop, but do no bottom out. And the gift of being treated while at home is second only to today’s news. We are still just simply high on that news.
|A lot of waiting and sitting. We were at the hospital from 645|
hours until 1930 hours on Friday.
|This is how we view the scans. These are images of his spine|
and the brain is on the screen at the end.