|After his first chemo day for relapse. check.|
It’s been a good day. That’s my best lead hook for you tonight, and it has been. I was nervously afraid about Eli starting his chemo today because my only experience with chemo is the kind that sends his vitals into a tailspin, his tummy up the top, and his intestines out the bottom for days. I’ve only ever stood like a hawk over his bed as the poison is being infused straight into his life blood watching for fatal warning signs. I have been in painful disbelief that we were going to have to put him through that again. And, I still am, but the Lord took care of us today and we had a good day. Instead of packing for five days “in-patient” (which if you remember was never only 5 days), we just walked into the clinic and were put in a little private room, then walked out three hours later done. His port was accessed for the first time, which he was nervous about. He was so nervous about it that yesterday when they needed to draw blood, the nurse asked if he wanted her to access his port or if he wanted her to draw it from his arm. He chose his arm. If you’ve seen the video of him having blood drawn, you can see why he chooses that. He doesn’t flinch. But, today, he didn’t have the choice. The port that was surgically implanted lies just under the skin in his top left chest. It is round with a gel-like center that covers access to the catheter running into his artery. So, to “access” it a nurse pushes a needle through the skin and into the center to get to the mouth of the catheter to either draw blood or infuse meds. It is no more painful than being poked with a needle, but sometimes the meds going straight to that vein can be uncomfortable. He made a little nervous moan at me which in verbal language means “I’m not so sure about this….”. But, there is no digging for a vein, no blowing of the vein, just a straight poke and they are in. He got all three chemo drugs today. Two are infused over one and a half hours each, back to back. Then came the tricky one. It is in capsule form, and requires five to get the dosage. The last time I tried to make him swallow a pill he was 7, and on a feeding tube refusing to put even gum in his mouth. So, the nurse and I decided to open the capsules and put it in water then pull it up with a dosing syringe and squirt it in his mouth. This is how I did a couple of years ago because I tried mixing it in juice or applesauce, but he would have to drink and eat every last drop. He was not even eating a cookie at that time. I had tried just dumping the powder right on the spoonful, but it altered the taste of the applesauce so bad hat he would just spit it out. So, I would crush it in a tiny bit of water, then squirt it really hard toward the back of his throat. That is the only experience I had to draw from when we prepared to give him these capsules. Since this was a chemo drug, we had to use gloves and a mask if we were going to open the capsules with potential poison powder in the air. So, we prepared for all of that with the gloves, the masks, the syringe, the water, the mixing cup. We got ready to open one, and I said, “hey, Eli, why don’t just try to swallow one of these. It’s just like when you accidentally swallow your gum.” In his trademark low monotone he said, “umm..sure.” And, boom, he swallowed five straight capsules one after another. I’ve said it so many times, but he does what he’s asked. Such a good kid. Of course, this is the first day of five days, the first five days of what I hope to be years of swallowing pills, so it may get old quick and I will be saying “This kid is killing me, I can’t get him to do anything!” But, today, he has been so good, in such a great mood and so agreeable and playful. So far I can’t even tell he got any chemo today and if it stabilizes him here for even a few months, it will be a wonderful place for him to be. While in the Medicine Room, as it is called, we sat and watched SpongeBob and played his DSi while I did some catch-up work, then we left when he was done. I was hesitant to get too far after that since I didn’t know if maybe something would hit him suddenly. Would he get nauseated or mess his pants up, would his blood pressure drop or rise? I had no idea and didn’t want to get caught carrying him through the mall or something trying to get to the car quickly, so we have been hanging out watching SpongeBog AGAIN, doing laundry, and transforming transformers since lunch. He has also been so excited because Vic is coming tonight and bringing the others for the weekend. So, we have no appointments and only have to get down five pills each day. Since we have relaxed on the raw diet, I let him pick anything he wanted to have after the MRI results yesterday as long as he still got in his veggie juice and one of the avocado puddings. He was so excited and he didn’t even have to think about it. His number one favorite is Zaxby’s chicken. And, of course, they are only located in like the suburbs. So, it took us more than 30 minutes to drive to one, and I kept mumbling complaints and other options we passed (just in fun, I would have driven anywhere, didn’t really matter… I don’t mind using the gas and riding like my husband does). He would grin and say over and over “It’ll be worth it, Mama, I promise, it will be worth it.” It was, but not because of the chicken.
|Getting his chemo on.|
|New Year's Eve, waiting for his Daddy to come upstairs.|
|Concentrating on what kind of Hot Wheels he found.|