Thursday, September 6, 2012


We have a variety of interesting things visit St. Jude. Eli is
just coming out of sedation recovery here.
  In The Office episode “Fun Run” of 2007 manager Michael Scott runs over employee Meredith with his company car. District manager Ryan Howard is worried and wants to know, “Did this happen on company property?” Michael says, “Yes. It happened on company property, with company property. So, double jeopardy. We are fine.” Ryan frowns, “I don’t think you know how jeopardy works.” “Oh, right, I’m sorry. What is ‘We’re Fine?’,” Michael says. So, Vic made it here this afternoon to go to the neurosurgeon appointment with me, and ‘We’re fine’? There was a communication break down between the nurse practitioner and me because I think she was being cautious and vague I only had limited experience from which to draw my conclusions. She had told me there was “fluid”, not hemorrhaging. The neurosurgeon said there was no new fluid build-up, and the old fluid had gone down. What she did not tell me was that they found an Arachnoid Cycst at the base of his brain behind his ear. These are common and not related to all of this cancer craziness. The surgeon said usually he would go in and get rid of it, but since Eli is recovering from the chemo he wants to leave it unless it causes problems or grows. So, good news today, really, I guess. The shunt is working properly and the fluid from the last build up is getting smaller. We meet with the oncologist tomorrow afternoon to look closely at his scans. They are working toward getting us home by the end of next week. A lot of things are dependent on that, his blood product needs and counts and his eating, but that is kind of their goal. He didn’t eat any more today than yesterday, but they are going to start weaning him off his TPN tomorrow.
Eli getting hooked up for sedation while he watches Spongebob.

I don’t have a lot of updates on the other little ones. I think Ryan’s mom is still waiting to see if Vandy will take Ryan, but there seems to be a lot of miscommunication between the hospitals. I have an address for Thomas if anyone would like to send cards “From Eli’s Friends.” The address is: Thomas Sullivan, 750 Loop Road, Ashville, AL 35953. He seems to be doing fine, just chugging along with his chemo treatments which I think will run until the end of the year. Also, Jack is recovering at home before beginning the next phase of his treatment for his recurrent medulloblastoma. If you would like to send him a card “From Eli’s Friends”, you may send it to: Jack Heming, 38 B Ardennes Road, Fort Lee VA 23801. He is a big McDonald’s chicken nuggets fan so slip him a buck so he can save enough to eat all the nuggets he wants before he starts chemo – again! Go, Lucy Go seems to be going and going. She seems to be doing great as she continues to heal and gain strength. Many more children out there fighting.

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