Sunday, May 6, 2012

The night air was warm for our walk tonight. Eli wanted to listen to music as we circled the Target House campus so he used his headphones. It’s funny how little kids forget that you aren’t hearing what they are hearing, so every now and then he would smile and look up at me or comment about whatever was playing. But, with his ears occupied, our walk was quieter between the two of us than normal. I love a nighttime walk or stroll. The warmth of a night doesn’t weigh on one’s shoulders like the heat of a day. And, don’t misunderstand me, I am a vitamin D gal, but the sun’s rays are heavy and beating. During the fading moments of a late spring twilight, warm air rides a light, calming breeze. It lifts one’s gaze to the sky to catch the first glimpse of the night that is coming, so with my head up now, I can release that cleansing breath I’ve been nurturing all day. It’s odd how the dark can shed a different light on one’s surroundings. The neatly kept pathways and landscaping of the Target House almost become like the set for a play under the soft but direct light of the copper tinted light posts. Walking alongside the end of Target House 1 where the isolation rooms are located (I think), we passed a mom and two little boys coming from the parking lot. I didn’t see the little one at first. The older boy, about Eli’s age, skipped briskly along the sidewalk in his pajamas and bare feet swinging a McDonald’s Happy Meal box. The mom, a bit behind him, had on a jacket held kind of tightly to cover what I’m guessing were her pajamas. So, obviously this was an evening drive-thru snack attack run. Then as we began to pass each other she stopped and turned to look behind her. When she turned to the side, a tiny bald head shown in the sidewalk light. He was a little guy, only about 3 years old, looking so cute in his white, blue trimmed pj’s and bare feet. He was trotting along with little bitty quick steps trying to keep up all the while digging through his open Happy Meal box that he delicately trapped on his thigh so as not to drop it. As we passed, he looked up with round eyes and the haunting light caught the sparkle of the tape on his cheek that held down a tiny feeding tube than ran into his nose. Our passing didn’t faze him as he continued digging and trotting. Eli loudly said as we walked away, “Is that he tube you’ve been talking about, like that kid has?” I had to pop out an ear plug and try to say quietly, yes, that was one way to do it. Eli, however, will be fed through his line because he is expected to throw up a lot. Puke coming up your nose with a feeding tube in it, is very unpleasant and it is tough to keep having to replace it. So, he will receive nutrients through his line. He has not eaten well today. It worries me that his nausea might be due to the shunt still not working right. The new shunt valve is magnetic, so after he has an MRI, the setting will be off so they take a little magnetic device and hold it near his head and turn it. Some kind of digital reader checks the setting to see if it is right. He had a functional MRI on Friday where they watch his brain activity as he works some puzzle type games. So, he had to be reset. The picture I’m including tonight is of Eli and his Legos that we do “together” which I really do. But, he is getting better at it although he likes the end product more than the journey which is bad news for me

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